But she became suspicious when Wiley didn’t wake to the sound of his twin brother Oliver playing on an iPad right next to him.
The moment I knew what was coming next.”
About three weeks ago we lost one of our boys.
“When I got the call I was sitting in a conference room with 12 people at our Portland office talking about PTO policies.
Minutes earlier, I had admitted to the group that in the last 8 years I’d not taken more than a contiguous week off.”
Instead, he took work calls.
“None seem that important now,” he wrote.
“If we’ve learned anything at all, it’s that life is fragile and time really can be so cruelly short.
You will not regret the email you forgot to send.”
“Don’t work too late. A lot of the things you are likely spending your time on you’ll regret once you no longer have the time,” he wrote.
“I’m guessing you have 1:1 meetings on the books with a lot of people you work with. Do you have them regularly scheduled with your kids? If there’s any lesson to take away from from this, it’s to remind others (and myself) not to miss out on the things that matter.
Though it will take approximately four months to officially declare Wiley’s cause of death, Storment and Brandes believe that Wiley, who suffered from rolandic epilepsy, most likely died of a phenomenon called SUDEP (sudden unexplained death epilepsy.) SUDEP claimed the life of Disney Channel star Cameron Boyce in July.
“It’s somewhat similar to SIDS in infants, where they aren’t sick with anything else at the time,” Dr. Julia Henry, a neurologist at the University of Chicago Medicine Comer Children’s Hospital, previously told TODAY.
“Wiley was warm and happy and asleep in his favorite place next someone who loved him. If I were to design my own death, it would be exactly that.